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2021 VCP Scientific Conference

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Proudly supported by


Jerry Mendell, MD

Professor of Pediatrics and Neurology at Nationwide Children’s Hospital

Conrad (Chris) Weihl, MD, PhD

Professor of Neurology at Washington University School of Medicine in St. Louis

Tahseen Mozaffar, MD

Professor — Department of Neurology, UCI School of Medicine

Nelson Pace, PhD, SM

Director of Epidemiology at AllStripes

Manisha Korb, PhD, MD

Assistant Professor — Department of Neurology, UCI School of Medicine

Eddie Lee, MD, PhD

Assistant Professor, Pathology & Laboratory Medicine, UPenn Perelman School of Medicine

Lindsay Alfano, PT, DPT, PCS

Principal Investigator - The Abigail Wexner Research Institute at Nationwide Children’s Hospital

Michelle Arkin, PhD

Department Chair and Professor, Department of Pharmaceutical Chemistry, UCSF

Jordi Diaz-Manera, MD, PhD

Professor of Neuromuscular Disorders, Newcastle University

Gerald Pfeffer, MD, CM, FRCPC, PhD

Assistant Professor Clinical Neurosciences, University of Calgary

Donna Huryn, PhD, ACSF

Professor, University of Pittsburgh School of Pharmacy

Nicholas Seyfried, PhD

Associate Professor, Emory University School of Medicine

Fabio Coppedè, PhD

Associate Professor of Medical Genetics at Università di Pisa

Barbara Wold, PhD

Director, Merkin Institute for Translational Research at Caltech

Alison Skrinar, PhD

Vice President Clinical Outcomes Research and Evaluation (CORE), Ultragenyx

George Tolomiczenki, PhD, MPH, MBA

Executive Director, Merkin Institute for Translational Research at Caltech

Peter Shen, PhD

Assistant Professor of Biochemistry, University of Utah

Alyssa Johnson, PhD

Assistant Professor, Louisiana State University

Hemmo Meyer, PhD

Professor, Department Molekularbiologie, Universität Duisburg-Essen

Tsui-Fen Chou, PhD - Steering Committee

Research Professor in Biology at California Institute of Technology

Virginia Kimonis, MD, MRCP - Steering Committee

Professor, Division of Genetics and Genomic Medicine, Department of Pediatrics at UC Irvine

Ming Guo, PhD, MD - Steering Committee

Professor in Neurology & Pharmacology at UCLA

Sujata Patel

Cure VCP Disease Board Member

Nathan Peck

VCP disease patient and Cure VCP Disease leader

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We are a patient advocacy organization driving efforts to find a cure for diseases caused by a mutation of the VCP gene including IBMPFD and ALS.


Cure VCP Disease, Inc.

Patient advocacy organization for VCP disease