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2021 VCP Scientific Conference

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Schedule

· Stage
Welcome and remarks from organizers
Welcome and brief introduction of event logistics
Nathan Peck
2021-09-09T13:00:00Z 2021-09-09T13:15:00Z America/New_York Welcome+and+remarks+from+organizers https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Keynote Speaker - Day 1
Keynote speaker
2021-09-09T13:15:00Z 2021-09-09T13:45:00Z America/New_York Keynote+Speaker+-+Day+1 https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 1 - Introduction to VCP disease
Discussion of clinical symptoms, diagnostic tools and pathological features
Virginia Kimonis, MD, MRCP - Steering Committee
2021-09-09T13:45:00Z 2021-09-09T15:00:00Z America/New_York Session+1+-+Introduction+to+VCP+disease https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 2 - New molecular and cellular mechanistic insight of VCP disease
Mechanistic insight, including the role of VCP in protein quality control, proteasome degradation, endolysomal function, autophagy regulation, etc.
Alyssa Johnson, PhD Peter Shen, PhD Hemmo Meyer, PhD
2021-09-09T15:15:00Z 2021-09-09T16:30:00Z America/New_York Session+2+-+New+molecular+and+cellular+mechanistic+insight+of+VCP+disease https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 3 - New tools and omics studies
New tools to facilitate collaborations. Various genomic, proteomics and other omics studies. Cryo EM studies may yield new insight in structures of VCP.
Nicholas Seyfried, PhD Fabio Coppedè, PhD
2021-09-09T16:30:00Z 2021-09-09T18:15:00Z America/New_York Session+3+-+New+tools+and+omics+studies https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 4 - Asia / Oceania Presentation
Presentation from Asia or Oceania researcher
2021-09-09T18:30:00Z 2021-09-09T19:30:00Z America/New_York Session+4+-+Asia+%2F+Oceania+Presentation https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Networking
Networking - Day 1
Live participants will have six 5-minute conversations with different participants. Rapid networking format.
2021-09-09T19:30:00Z 2021-09-09T20:00:00Z America/New_York Networking+-+Day+1 https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Day 1 Conclusion
Wrap-up and discuss Day 2 agenda
Nathan Peck
2021-09-09T20:00:00Z 2021-09-09T20:05:00Z America/New_York Day+1+Conclusion https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Day 2 Welcome
Recap of Day 1 and outline of Day 2 program.
Sujata Patel
2021-09-10T10:00:00Z 2021-09-10T10:15:00Z America/New_York Day+2+Welcome https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Keynote Speaker - Day 2
Presentation - Translational topic
George Tolomiczenki, PhD, MPH, MBA Barbara Wold, PhD
2021-09-10T10:15:00Z 2021-09-10T11:00:00Z America/New_York Keynote+Speaker+-+Day+2 https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 5 - New inhibitors and small molecules of VCP/p97
Discussion on the recent findings and mechanistic studies of VCP inhibitors, including small molecule compounds and ASOs.
2021-09-10T11:00:00Z 2021-09-10T12:15:00Z America/New_York Session+5+-+New+inhibitors+and+small+molecules+of+VCP%2Fp97 https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Networking
Networking - Day 2
Live participants will have six 5-minute conversations with different participants. Rapid networking format.
2021-09-10T12:30:00Z 2021-09-10T13:00:00Z America/New_York Networking+-+Day+2 https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Highlighted Poster Presentations
Three selected posters from Student & Post-doctoral scholars submissions will be selected to present
2021-09-10T13:00:00Z 2021-09-10T13:30:00Z America/New_York Highlighted+Poster+Presentations https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 6 - Gaps in current research areas
Identify gaps in research and guide future research agenda.
2021-09-10T13:30:00Z 2021-09-10T14:15:00Z America/New_York Session+6+-+Gaps+in+current+research+areas https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 7 - Gaps in current clinical knowledge
Identify gaps in research and clinical knowledge and guide future research agenda
2021-09-10T14:15:00Z 2021-09-10T15:00:00Z America/New_York Session+7+-+Gaps+in+current+clinical+knowledge https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 8 - Clinical Trial Readiness
Biomarker discovery, toxicology considerations and patient longitudinal studies.
Alison Skrinar, PhD
2021-09-10T15:15:00Z 2021-09-10T16:00:00Z America/New_York Session+8+-+Clinical+Trial+Readiness https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Sessions
Session 9 - Looking forward
Where do we go from here?
2021-09-10T16:00:00Z 2021-09-10T17:15:00Z America/New_York Session+9+-+Looking+forward https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Day 2 Conclusion and Actions
Sujata Patel
2021-09-10T17:15:00Z 2021-09-10T17:30:00Z America/New_York Day+2+Conclusion+and+Actions https%3A%2F%2Fhopin.com%2Fevents%2Fvcp-scientific-conference-2021 Hosted virtually on Hopin (link in the description)

Speakers

Nicholas Seyfried, PhD

Associate Professor, Emory University School of Medicine

Fabio Coppedè, PhD

Associate Professor of Medical Genetics at Università di Pisa

Barbara Wold, PhD

Director, Merkin Institute for Translational Research at Caltech

Alison Skrinar, PhD

Vice President Clinical Outcomes Research and Evaluation (CORE), Ultragenyx

George Tolomiczenki, PhD, MPH, MBA

Executive Director, Merkin Institute for Translational Research at Caltech

Peter Shen, PhD

Assistant Professor of Biochemistry, University of Utah

Alyssa Johnson, PhD

Assistant Professor, Louisiana State University

Hemmo Meyer, PhD

Professor, Department Molekularbiologie, Universität Duisburg-Essen

Tsui-Fen Chou, PhD - Steering Committee

Research Professor in Biology at California Institute of Technology

Virginia Kimonis, MD, MRCP - Steering Committee

Professor, Division of Genetics and Genomic Medicine, Department of Pediatrics at UC Irvine

Ming Guo, PhD, MD - Steering Committee

Professor in Neurology & Pharmacology at UCLA

Sujata Patel

Cure VCP Disease Board Member

Nathan Peck

VCP disease patient and Cure VCP Disease leader

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Cure VCP Disease, Inc.

We are a patient advocacy organization driving efforts to find a cure for diseases caused by a mutation of the VCP gene including IBMPFD and ALS.

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Cure VCP Disease, Inc.

Patient advocacy organization for VCP disease