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Speakers

Samuel Agyei Wiafe

Founder and Executive Director, Rare Disease Ghana Initiative.

Pinky Chirwa

Nelson Mandela Children's Hospital

Ayotunde Omitogun

Rare Diseases Nigeria

Rose Okoma

Aux Pas Du Coeur - Ivory Coast

Manzi Ndamukunze

Centre Alliance, Rwanda

Hawa DRAME

Fondation Internationale TIerno et MAriam - FITIMA

Trudy Nyakambangwe

Child & Youth Care - Zimbabwe

Lara Bloom

The Ehlers-Danlos Society

Mary Wang

Rare Diseases International (RDI) Scientific Policy Manager

Matt Bolz-Johnson

Rare Diseases International (RDI)

Nthabeleng Ramoeli

RARE Diseases Lesotho Associations

Christine Mutena

Rare Disorder Kenya

Hlawulani Mkhabela

Rare Diseases International (RDI) Strategic Engagement Manager

Durhane Wong-Rieger

Rare Diseases International (RDI) Chair

Flaminia Macchia

Rare Diseases International (RDI) Executive Director

Kelly du Plessis

Rare Diseases South Africa

Rana Saifi

WHF - Regional Manager Middle East

Lwazi Manzi

Head of Secretariat of the AU Commission on COVID-19

Mary Ampomah

Global Sickle Cell Disease Organization

Gareth Baynam

University of Western Australia

Aime Lumaka

Human Heredity and Health in Africa (H3Africa) Intiative

Kawaldip Sehmi

International Alliance of Patients' Organizations

Rüdiger Kresh

World Health Organization

Domenica Taruscio

Undiagnosed DIseases Network International

Greg Perry

International Federation of Pharmaceutical Manufacturers & Associations

Arme Hendriksz

CEO of FYMCA Medical Ltd

Eda Selebatso

Botswana Organisation for Rare Diseases (BORDIS)

Roselyn Kanja

Kwaku Ohene-Frempong

director emeritus of the Comprehensive Sickle Cell Center at Children’s Hospital of Philadelphia

Mawutor Ablo

Director Social Protection at Ministry of Gender, Children and SocialProtection

Emmanuella Amoako

Charles Hammond

Hosted by

Rare Disease Ghana Initiative

Rare Disease Ghana Initiative (RDGI) is the National Non-Governmental Advocacy Organization for Undiagnosed, and Rare Disorders made up of a network of professionals, patients, caregivers and organizations whose aim is to develop, seek wide endorsement and to advocate for the implementation of a plan to support research, education, service development and seek support for individuals and families affected by undiagnosed, genetic and rare diseases in Ghana.

Booths

Rare Disease Ghana Initiative

The voice for Undiagnosed, Genetic and Rare Diseases in Ghana

Rare Diseases International

Global Alliance of Persons Living with a Rare Disease and their Families

Rare Disorders Kenya

We provide a united voice for the rare disease community in Kenya

Ghana Hemophilia Society

Breaking the chains of Hemophilia

The Rheumatology Initiative

Education. Advocacy. Research

RICKMES FOUNDATION

Spina Bifida and Hydrocephalus Organization in Ghana.