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International Conference on Rare Diseases 2021

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Schedule

· Stage
Hopin Platform Introduction & Conference Etiquette
2021-03-01T09:00:00Z 2021-03-01T09:10:00Z Europe/Athens Hopin+Platform+Introduction+%26+Conference+Etiquette https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
Welcome Addresses
2021-03-01T09:10:00Z 2021-03-01T10:00:00Z Europe/Athens Welcome+Addresses https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
OPENING SPEECHES
2021-03-01T10:00:00Z 2021-03-01T11:00:00Z Europe/Athens OPENING+SPEECHES https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 1
THE DIAGNOSTIC ODYSSEY: CURRENT CHALLENGES AND OPPORTUNITIES
2021-03-01T11:00:00Z 2021-03-01T12:00:00Z Europe/Athens SESSION+1 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Networking
Networking Break
2021-03-01T12:00:00Z 2021-03-01T12:30:00Z Europe/Athens Networking+Break https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Expo
Expo
2021-03-01T12:00:00Z 2021-03-01T12:30:00Z Europe/Athens Expo https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 2
NEWBORN SCREENING: A BENEFICIAL AND COST-EFFECTIVE PUBLIC HEALTH STRATEGY
2021-03-01T12:30:00Z 2021-03-01T13:30:00Z Europe/Athens SESSION+2 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 3
TRANSFORMING CARE FOR RARE DISEASES
2021-03-01T13:30:00Z 2021-03-01T15:00:00Z Europe/Athens SESSION+3 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Expo
Expo
2021-03-01T15:00:00Z 2021-03-01T15:30:00Z Europe/Athens Expo https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Networking
Networking Break
2021-03-01T15:00:00Z 2021-03-01T15:30:00Z Europe/Athens Networking+Break https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 4
ADVANCING RESEARCH FOR RARE DISEASES
2021-03-01T15:30:00Z 2021-03-01T17:00:00Z Europe/Athens SESSION+4 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
OPENING SPEECHES
2021-03-02T09:45:00Z 2021-03-02T10:30:00Z Europe/Athens OPENING+SPEECHES https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 5
INNOVATIVE TECHNOLOGIES FOR RARE DISEASES
2021-03-02T10:30:00Z 2021-03-02T11:30:00Z Europe/Athens SESSION+5 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 6
THE DYNAMICS OF RDS POLICY IN EU
2021-03-02T11:30:00Z 2021-03-02T13:00:00Z Europe/Athens SESSION+6 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Networking
Networking Break
2021-03-02T13:00:00Z 2021-03-02T13:30:00Z Europe/Athens Networking+Break https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Expo
Expo
2021-03-02T13:00:00Z 2021-03-02T13:30:00Z Europe/Athens Expo https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
PANEL DISCUSSION
ENSURING ACCESSIBLE, AVAILABLE AND AFFORDABLE TREATMENTS FOR PEOPLE LIVING WITH RARE DISEASES
2021-03-02T13:30:00Z 2021-03-02T15:00:00Z Europe/Athens PANEL+DISCUSSION https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Networking
Networking Break
2021-03-02T15:00:00Z 2021-03-02T15:30:00Z Europe/Athens Networking+Break https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Expo
Expo
2021-03-02T15:00:00Z 2021-03-02T15:30:00Z Europe/Athens Expo https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)
· Stage
SESSION 7
NAVIGATING RARE PATIENT’S ACCESS IN GREECE
2021-03-02T15:30:00Z 2021-03-02T17:00:00Z Europe/Athens SESSION+7 https%3A%2F%2Fhopin.com%2Fevents%2Frarediseases-conference-2021 Hosted virtually on Hopin (link in the description)

Speakers

Emmanuel Roilides

Professor of Pediatrics

CHRISTOS DIMAS

Deputy Minister for Research and Innovation, Ministry of Development and Investments, Greece

Daria Julkowska

Coordinator of the European Joint Programme on Rare Diseases

Evanthia Orfanou

President of the Association of Cancer Patients & Rare Diseases of the Prefecture of Evros

Manolis Papasavvas

BoD President and Hospital Manager, Children's Hospital "Agia Sofia”, Athens

Panagiota Mitrou

Internist-Diabetologist, Head of Independent Department of Therapeutic Protocols

Leonidas Stefanis

MD, PhD, Professor of Neurology, National and Kapodistrian University of Athens

Ines Hernando

Director of European Reference Networks and Healthcare, EURORDIS

persephone augoustides-savvopoulou

MD, PhD, Emeritus Professor, Medical School, Aristotle University of Thessaloniki

Andrea Corazza

Head of Brussels Liaison Office, Public Policy & Government Affairs, Biogen

Elizabeth Vroom

Chair, World Duchenne Organization, Directeur, Duchenne Parent Project Nederland, Board Member, EURORDIS

Gulcin Gumus

Research and Policy Project Manager, EURORDIS

Claudia Gamon

MEP (RE, AU), Member ITRE

Georgia Moraiti

MSc, Social Worker, MDA Hellas

ARTEMIS DOULGERAKI

MD, PhD, MRCPCH, FRCPCH, Consultant Paediatrician

Dimitrios Synodinos

Professor of Genetics, National Kapodistrian University of Athens

Lauren Roberts

Director of Support, Genetic Alliance UK/ SWAN UK

Elina Miaouli

Vice President, “95” Rare Alliance Greece, Rare Disease Patient Advocate

Nathalie Moll

Director General, European Federation of Pharmaceutical Industries and Associations (EFPIA)

Thanasis Kontogeorgis

Secretary General for Coordination, Presidency of the Hellenic Government

Tomislav Sokol

MEP, EPP Group in the European Parliament

ΜΑΙΡΗ ΑΔΑΜΟΠΟΥΛΟΥ

President “95” Rare Alliance Greece

Dimitrios Papadimoulis

Vice President, European Parliament

Vasileios Karatzias

President, Hellenic Friedreich’s Ataxia Association

DIMITRIOS ATHANASIOU

EMA Pediatric Committee, EPF, WDO, EAE Board Member

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Booths

95, Rare Alliance Greece

Empowering the Rare Disease Patients

TAKEDA

Better Health, Brighter Future

Alexion Pharmaceuticals

Our passion drives us to continuously innovate. Learn more…

Biogen

Our mission is clear: we are pioneers in neuroscience

Chiesi Hellas

Patients are the beginning and the end of our journey!

Novartis Gene Therapies Switzerland GmbH

BREAKING BARRIERS to reimagine the treatment of rare, genetic diseases.

Roche

Doing now what the patients need next

GENESIS Pharma

We invest in innovation that opens up new therapeutic pathways

CSL Behring Hellas

Focus on Serious & Rare Diseases

Innovis Pharma

Greek pharmaceutical company

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