Speakers
ΕMA Pediatric Committee, EPF, WDO, EAE Board Member
Hellenic Friedreich’s Ataxia Association, Legal Advisers, NATO Rapid Deployable Corps
Vice President, European Parliament
Minister of Health, Hellenic Ministry of Health
Director General, European Federation of Pharmaceutical Industries and Associations (EFPIA)
Chief Executive Officer, EURORDIS-Rare Diseases Europe
President “95” Rare Alliance Greece
Psychiatrist, Memember of the European Parliament
Executive Director, Thalassaemia International Federation (TIF)
Member of the BoD, EURORDIS, CEO of FEDER
Public Health Policy Director – Rare2030 Project Lead, EURORDIS-Rare Diseases Europe
Active Senior on Public Health for the European Commission
MD, DSc, Head of the National center for Cystic Fibrosis, Prague, Board Member of ESHG
Associate Professor at Vilnius University, Faculty of Medicine, Head of Unit
PhD Senior Policy officer- Research Programmes, DG Research and Innovation, European Commission
Member of the Board of Directors EURORDIS-Rare Diseases Europe, Chair of World Duchenne Organization
Board of Directors EURORDIS-Rare Diseases, UNIAMO, Member of the Council of National Alliances
Senior Director, Patient Advocacy Lead, Global Product Development, Pfizer Rare Disease
Department of Pediatrics and Adolescent Medicine, Medical University Vienna,
Chair, Future-Proofing Health Systems Committee, European Health Parliament, 7th edition
Minister for Labor and Social Affairs, Greece
MD, PhD, MA, Asst. Prof. of Paediatrics, Medical Faculty, University Medical Centre
MPH Chair of the Committee for Orphan Medicinal Products (COMP), European Medicines Agency (EMA)
EJP RD Coordinator, Assistant Director, INSERM, France
Secretary General, European Confederation of Pharmaceutical Entrepreneurs (EUCOPE)
Scientific Administrator, Data Analytics and Methods Task Force, European Medicines Agency (EMA)
Public Affairs Director, EURORDIS-Rare Diseases Europe
Coordinator of the Orphanet Work Direct Grant and of the RD-CODE Project
President of the European Haemophilia Consortium (EHC)
Policy Officer, Unit B.3, DG Health and Food Safety, European Commission
Head of Government Affairs and Public Policy, EMEA & APAC, PTC Therapeutics
OCM Director – Regulatory Science Europe at Critical Path Institute (C-Path)
Founder & CEO, Data for Patients
Head of Advanced Therapies Human Medicines Division, European Medicines Agency (EMA)
Chair, Scientific Advice Working Party, EMA, Vice Chair EUnetHTA21, Senior Advisor NoMA
CEO, HCD Economics
Executive Director, Head of International Government Affairs and Policy, Alexion Pharmaceuticals
MEP, EPP Group in the European Parliament
Technical Officer, Medical Product Regulation at World Health Organization (WHO)
Senior Policy Officer, Thalassaemia International Federation (TIF)
Global Access & Healthcare Funding & Financing solutions lead, Roche
Managing Director of Vital Transformation
Professor, Finance, Director, Laboratory for Financial Engineering, MIT Sloan School of Management
CEO Apollo Therapeutics
PhD. Vice President NovaQuest Capital Management
Investment Officer, Growth Capital & Innovation Finance Unit, European Investment Bank (EIB)
Member of the European Parliament
MD, PhD Alternate Minister of Health, Ministry of Health, Greece
CeO IFET
General Manager of the Hellenic Association of Pharmaceutical Companies (SFEE)
Professor of Pathology-Rheumatology, Medical School, NKUA
General Manager, IQVIA Greece
Secretary General of Social Insurance, Ministry for Labor and Social Affairs
Associate Professor, Laboratory of Health Economics and Management, University of Piraeus
Senior Vice President Market Access and Pricing, Alira Health
Booths
95, Rare Alliance Greece
Empowering the Rare Disease Patients
TAKEDA
Better Health, Brighter Future
Novartis
BREAKING BARRIERS to reimagine the treatment of rare, genetic diseases.
Roche
Doing now what the patients need next
Alexion Pharmaceuticals
Our passion drives us to continuously innovate. Learn more…
Chiesi Hellas
Patients are the beginning and the end of our journey!
GENESIS Pharma
We invest in innovation that opens up new therapeutic pathways
IFET
IFET imports, produces and distributes to the Greek market, pharmaceutical products essential to the public health
IQVIA Hellas
Push the boundaries of Healthcare
Hellenic Association of Pharmaceutical Companies
Making the impossible, possible for people living with rare diseases
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