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Speakers

Dimitrios Athanasiou

ΕMA Pediatric Committee, EPF, WDO, EAE Board Member

Vasilis KARATZIAS

Hellenic Friedreich’s Ataxia Association, Legal Advisers, NATO Rapid Deployable Corps

Dimitris PAPADIMOULIS

Vice President, European Parliament

Thanos PLEVRIS

Minister of Health, Hellenic Ministry of Health

Nathalie MOLL

Director General, European Federation of Pharmaceutical Industries and Associations (EFPIA)

Yann LE CAM

Chief Executive Officer, EURORDIS-Rare Diseases Europe

Mary ADAMOPOULOU

President “95” Rare Alliance Greece

Stelios KYMPOUROPOULOS

Psychiatrist, Memember of the European Parliament

Androulla ELEFTHERIOU

Executive Director, Thalassaemia International Federation (TIF)

Alba ALCONCHEA DIAZ

Member of the BoD, EURORDIS, CEO of FEDER

Anna KOLE

Public Health Policy Director – Rare2030 Project Lead, EURORDIS-Rare Diseases Europe

Antoni MONTSERRAT MOLINER

Active Senior on Public Health for the European Commission

Prof. Milan MACEK

MD, DSc, Head of the National center for Cystic Fibrosis, Prague, Board Member of ESHG

Prof. Birute TUMIENE

Associate Professor at Vilnius University, Faculty of Medicine, Head of Unit

Christina KYRIAKOPOULOU

PhD Senior Policy officer- Research Programmes, DG Research and Innovation, European Commission

Elizabeth VROOM

Member of the Board of Directors EURORDIS-Rare Diseases Europe, Chair of World Duchenne Organization

Simona BELLAGAMBI

Board of Directors EURORDIS-Rare Diseases, UNIAMO, Member of the Council of National Alliances

Nicolas GARNIER

Senior Director, Patient Advocacy Lead, Global Product Development, Pfizer Rare Disease

Vassiliki KONSTANTOPOULOU

Department of Pediatrics and Adolescent Medicine, Medical University Vienna,

Norbert COUESPEL

Chair, Future-Proofing Health Systems Committee, European Health Parliament, 7th edition

Konstantinos HATZIDAKIS

Minister for Labor and Social Affairs, Greece

Urh GROSELJ

MD, PhD, MA, Asst. Prof. of Paediatrics, Medical Faculty, University Medical Centre

Violeta STOYANOVA-BENINSKA

MPH Chair of the Committee for Orphan Medicinal Products (COMP), European Medicines Agency (EMA)

Daria JULKOWSKA

EJP RD Coordinator, Assistant Director, INSERM, France

Alexander NATZ

Secretary General, European Confederation of Pharmaceutical Entrepreneurs (EUCOPE)

Alexandra PACURARIU

Scientific Administrator, Data Analytics and Methods Task Force, European Medicines Agency (EMA)

Simone BOSELLI

Public Affairs Director, EURORDIS-Rare Diseases Europe

Ana RATH

Coordinator of the Orphanet Work Direct Grant and of the RD-CODE Project

Declan NOONE

President of the European Haemophilia Consortium (EHC)

Dr. Jose A. VALVERDE

Policy Officer, Unit B.3, DG Health and Food Safety, European Commission

Thomas BOLS

Head of Government Affairs and Public Policy, EMEA & APAC, PTC Therapeutics

Cécile OLLIVIER

OCM Director – Regulatory Science Europe at Critical Path Institute (C-Path)

Kristof VANFRAECHEM

Founder & CEO, Data for Patients

Ana HIDALGO-SIMON

Head of Advanced Therapies Human Medicines Division, European Medicines Agency (EMA)

Anja SCHIEL

Chair, Scientific Advice Working Party, EMA, Vice Chair EUnetHTA21, Senior Advisor NoMA

Jamie O’ HARA

CEO, HCD Economics

Maciej GAJEWSKI

Executive Director, Head of International Government Affairs and Policy, Alexion Pharmaceuticals

Tomislav SOKOL

MEP, EPP Group in the European Parliament

Stanislav KNIAZKOV

Technical Officer, Medical Product Regulation at World Health Organization (WHO)

Eleni ANTONIOU

Senior Policy Officer, Thalassaemia International Federation (TIF)

Fernando ARNAIZ

Global Access & Healthcare Funding & Financing solutions lead, Roche

Duane SCHULTHESS

Managing Director of Vital Transformation

Andrew W. LO

Professor, Finance, Director, Laboratory for Financial Engineering, MIT Sloan School of Management

Richard MASON

CEO Apollo Therapeutics

Devin ROSENTHAL

PhD. Vice President NovaQuest Capital Management

Gergely KRAJCSI

Investment Officer, Growth Capital & Innovation Finance Unit, European Investment Bank (EIB)

Maria da Graça CARVALHO

Member of the European Parliament

Mina GAGA

MD, PhD Alternate Minister of Health, Ministry of Health, Greece

Giannis SOTIRIOU

CeO IFET

Michael HIMONAS

General Manager of the Hellenic Association of Pharmaceutical Companies (SFEE)

Dimitrios BOUMPAS

Professor of Pathology-Rheumatology, Medical School, NKUA

Nikos KOSTARAS

General Manager, IQVIA Greece

Pavlina KARASIOTOU

Secretary General of Social Insurance, Ministry for Labor and Social Affairs

Athanassios VOZIKIS

Associate Professor, Laboratory of Health Economics and Management, University of Piraeus

Nerea Blanque-Catalina

Senior Vice President Market Access and Pricing, Alira Health

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Booths

95, Rare Alliance Greece

Empowering the Rare Disease Patients

TAKEDA

Better Health, Brighter Future

Novartis

BREAKING BARRIERS to reimagine the treatment of rare, genetic diseases.

Roche

Doing now what the patients need next

Alexion Pharmaceuticals

Our passion drives us to continuously innovate. Learn more…

Chiesi Hellas

Patients are the beginning and the end of our journey!

GENESIS Pharma

We invest in innovation that opens up new therapeutic pathways

IFET

IFET imports, produces and distributes to the Greek market, pharmaceutical products essential to the public health

IQVIA Hellas

Push the boundaries of Healthcare

Hellenic Association of Pharmaceutical Companies

Making the impossible, possible for people living with rare diseases

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