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Rally on Research: Early-Age Onset Colorectal Cancer

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Suet Yi Leung, MD, MBBS

The University of Hong Kong

Andrea (Andi) Dwyer

Advisor to Fight CRC’s Patient Education and Research Aims, University of Colorado - United States

Danielle Ripley-Burgess

Author, Diagnosed Stage III @ age 17 - United States

Reese Garcia, MPH

Senior Research Advocacy Manager, Fight CRC - United States

Kevin Monahan, FRCP, PhD

St. Mark's Hospital - United Kingdom

Caroline Johnson, PhD

Yale University School of Public Health - United States

Anjee Davis, MPPA

President, Fight CRC - United States

Kimmie Ng, MD

Harvard Medical School; Dana-Farber Cancer Institute - United States

Elsa Weltzien, MPH

Research Engagement Manager, Fight CRC - United States

Robert Smith, PhD

American Cancer Society - United States

Samir Gupta, MD

University of California San Diego Health - United States

Sophia Boffa

Diagnosed Stage II @ age 36 - Australia

José Perea Garcia, MD, PhD

Fundación Jiménez Díaz University Hospital - Spain

Diego Davis-Olegario

Diagnosed Stage IIIb @ age 33 - United States

Andreana Holowatyj, PhD, MSCI

Vanderbilt University Medical Center - United States

Jeff Toews

Caregiver of EAO CRC patient - Canada

Heather Hampel, MS, LGC

The Ohio State University Comprehensive Cancer Center - United States

Mary Jane Esplen, PhD

University of Toronto - Canada

Caitlin Murphy, PhD, MPH

UT Southwestern Medical Center - United States

Olusegun Isaac Alatise, MBChB, MSc, FWACS, FMCS

Obafemi Awolowo University - Nigeria

Antonino Spinelli, MD, PhD

Humanitas University - Italy

Elena Stoffel, MD, MPH

University of Michigan, United States

Molly McDonnell

Director of Advocacy, Fight CRC - United States

Laura Lorenzon, MD, PhD

A. Gemelli University Hospital Foundation - IRCCS; Italy

Joshua Demb, PhD, MPH

University of California San Diego - United States

Michael Overman, MD

MD Anderson Cancer Center - United States

Mike Marosits

Patient Education Manager, Fight Colorectal Cancer - United States

Andrea Cercek, MD

Memorial Sloan Kettering Cancer Center - United States

Elena Élez, MD, PhD

Vall Hebron University Hospital - Spain

Catie Young

Digestive Cancer Europe - Belgium

Manju George, MVSc, PhD

Colontown - United States

Maria Rescigno, PhD

Humanitas University - Italy

Peirong Ding, MD, PhD, FACS

Sun Yat-Sen University Cancer Center - China

Yin Cao, ScD, MPH

Washington University School of Medicine - United States

Nicole Dowling, PhD

Centers for Disease Control and Prevention, Division of Cancer Prevention and Control

Donna Kimbark, PhD

Department of Defense, Peer Reviewed Cancer Research Program

Matthew Young, PhD

National Cancer Institute, Division of Cancer Prevention

Stacey Fedewa, PhD, MPH

American Cancer Society - United States

Angela Nicholas, MD

Einstein Medical Center Montgomery - United States

Vincent de Jong

Diagnosed Stage IV @ age 42 - Netherlands

Paul Schroy III, MD, MPH

Boston University School of Medicine - United States

Noel de Miranda, PhD

Leiden University Medical Center - Netherlands

Jennifer Ose, PhD

University of Utah, Huntsman Cancer Institute - United States/Germany

Michael White, MD

MD Anderson Cancer Center - United States

Whitney Jones, MD

Colon Cancer Prevention Project; University of Louisville School of Public Health - United States

Kristin Kilbourn, PhD, MPH

University of Colorado Denver - United States

Jennifer Ganser

EAO CRC Caregiver/Widow - United States

Roberta Horgan

Lynch Syndrome Ireland

Sam Shrivastava

Venn Therapeutics - United States

Jessica Buscho

Diagnosed Stage IV – United States

eliya Farah

Colorectal Cancer Canada - Canada

Jovana Despotović

University of Belgrade

Wenora Johnson

Diagnosed Stage IIIb, Age 44 – United States

Iris Karry

Colorectal Cancer Canada – Canada

Giovana Torrezan

Camargo Cancer Center, Brazil

Maria de los Angeles Alvarez

Hospital Clínic de Barcelona – Spain

Joanna Haydon

Diagnosed Stage III, Age 31

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Fight Colorectal Cancer

We FIGHT to cure colorectal cancer and serve as relentless champions of hope for all affected by this disease through informed patient support, impactful policy change, and breakthrough research endeavors

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Research Advocacy Training (RATS) Program

Fight Colorectal Cancer’s Research Advocacy Training and Support (RATS) program trains colorectal cancer advocates to become the most educated patient voice at the research table.

Climb for a Cure

Join Fight CRC’s relentless champions of hope as we Climb for a Cure on August 22, 2021. Whether you scale an actual mountain or walk the small inclines of your neighborhood sidewalks or a nearby wooded path, get active and raise funds for colon and rectal cancers.

Global Early-Age Onset CRC Trends and Disparities

Supplemental video

Survivorship Care Planning Resources

All cancer patients who have completed treatment should receive a personalized treatment summary and a detailed plan of ongoing care.

Advocacy Abstract: Nancy Seybold et al.

COLONTOWN University: Novel CRC Patient Education Resources for Patient Empowerment

Advocacy Abstract: Debi Fox

Improving Quality of Life by Incorporating Properly Trained Ostomy Peers to Provide Education Support and Non-Clinical Care into Treatment

Advocacy Abstract: Elle Doherty, MPH, CHE and Iris Karry

Never Too Young: Early-Age Onset Patient and Caregiver Experiences in Canada

Advocacy Abstract: Michael Mancini

Awareness Drives Preventative Screening Coverage for Employees

Advocacy Abstract: Vanesa Abon et al.

Advocates in cancer research: a guideline to bring closer the scientific community and cancer patients

Advocacy Abstract: Andrea Bauer et al.

On-Call Allies: A More Tailored Approach to Colorectal Cancer Patient Support

Advocacy Abstract: Allison Rosen

Social Media Tactics to Educate, Advocate and Collaborate, Spreading Awareness About Early Age Onset Colorectal Cancer

Advocacy Abstract: Jessica Buscho

Sharing Actual Patient Experience in Understanding, Searching, Matching, Enrolling, and Participating in Clinical Trials

Advocacy Abstract: Joni Thomes

Raising awareness, challenging perceptions and motivating action to address Australia’s rising rates of early-age onset bowel cancer

Advocacy Abstract: Wenora Johnson

Early Age Onset CRC and My Research Advocacy Efforts and Contributions

Scientific Abstract: Carmen Fong, MD et al.

Majority of patients undergoing colorectal cancer resection 2010-2018 have not participated in colorectal screening programs

Scientific Abstract: Giovanna Tardin Torrezan et al.

Molecular and clinical characterization of Brazilian early-age onset colorectal cancer patients

Scientific Abstract: Helen Curley et al.

Genetics of early onset colorectal cancers

Scientific Abstract: Maria Daca Alvarez et al.

Familial Component of Early-Onset Colorectal Cancer in Europe: An Opportunity for Disease Prevention

Scientific Abstract: Sara Tamburello et al.

Comparative analysis of tumor characteristics and oncologic outcomes of patients with early-versus late-onset rectal cancer

Scientific Abstract: Caterina Foppa et al.

Is early-onset colorectal cancer different according to disease location? Analysis of tumor characteristics, risk factors and clinical outcomes of 385 genetically tested patients

Scientific abstract: Nicholas Matovu et al.

Characterising the burden of early onset colorectal cancers in Africa: a systematic review and meta-analysis

Scientific abstract: Julia Stal et al.

Sexual dysfunction among young adult colorectal cancer survivors

Scientific Abstract: Jovana Despotović et al.

Genetic analysis of SMAD4 C-terminal domain in patients with microsatellite stable early-age onset colorectal cancer

Scientific Abstract: Melissa Lumish et al.

Establishing a Coordinated Clinical Center for Young Onset Colorectal Cancer

Scientific Abstract: Jinhee Hur et al.

Sugar-sweetened beverage intake in adulthood and adolescence and risk of early-onset colorectal cancer among women

Scientific Abstract: Holli Loomans-Kropp et al.

Methylated Septin9 (mSEPT9) is a promising biomarker for the early detection and screening of early-onset colorectal cancer