Noma, a disease that shouldn’t exist anymore

Name: Noma, a disease that shouldn’t exist anymore
Start: 2021-02-11 13:00:00 +0100
End: 2021-02-11 17:00:00 +0100

Feb 11, 12:00PM to Feb 11, 4:00PM UTC

Description Sponsors Schedule Speakers

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Schedule

February 11, 2021 12:00pm 12:00PM–12:05PM · Stage

Welcome & host

2021-02-11T13:00:00Z 2021-02-11T13:05:00Z Europe/Amsterdam Welcome+%26+host https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:05pm 12:05PM–12:10PM · Stage

Surviving noma

Short documentary directed by Claire Jeantet and Fabrice Catérini - Inediz

2021-02-11T13:05:00Z 2021-02-11T13:10:00Z Europe/Amsterdam Surviving+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:10pm 12:10PM–12:12PM · Stage

Part 1 - What is noma ?

2021-02-11T13:10:00Z 2021-02-11T13:12:00Z Europe/Amsterdam Part+1+-+What+is+noma+%3F+ https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:12pm 12:12PM–12:14PM · Stage

Short message

PLOS NTDs recently added noma to its own list of Neglected Tropical Diseases. Prof. Peter Hotez explains why prioritising this disease in the time of COVID-19.

2021-02-11T13:12:00Z 2021-02-11T13:14:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:14pm 12:14PM–12:18PM · Stage

Fidel’s story

Following 27 surgeries and years of speech therapy, noma survivor and advocate Fidel Strub is active in efforts to overcome noma, here he shares his story.

2021-02-11T13:14:00Z 2021-02-11T13:18:00Z Europe/Amsterdam Fidel%E2%80%99s+story https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:18pm 12:18PM–12:31PM · Stage

What we know and don’t know about noma

Noma expert Dr Denise Baratti-Mayer, outlines current clinical understanding of the disease, its prevalence and aetiology, and outstanding gaps.

2021-02-11T13:18:00Z 2021-02-11T13:31:00Z Europe/Amsterdam What+we+know+and+don%E2%80%99t+know+about+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:31pm 12:31PM–12:33PM · Stage

Part 2 - A global issue

2021-02-11T13:31:00Z 2021-02-11T13:33:00Z Europe/Amsterdam Part+2+-+A+global+issue+ https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:33pm 12:33PM–12:39PM · Stage

Short message

Hon. Dr Osagie Ehanire outlines the steps in place to increase awareness of noma in Nigeria and pledges the country’s support to efforts to eradicate it.

2021-02-11T13:33:00Z 2021-02-11T13:39:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:39pm 12:39PM–12:49PM · Stage

A story about noma, an old companion of mankind

Dr Klaas Marck looks at the history of noma, including how the disease disappeared from Europe in the 19th century and explains how we can tackle it today.

2021-02-11T13:39:00Z 2021-02-11T13:49:00Z Europe/Amsterdam A+story+about+noma%2C+an+old+companion+of+mankind https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:49pm 12:49PM–12:57PM · Stage

The hidden face of noma in Laos

From Lao’s first reported noma case to identifying over 50 survivors, Dr Leila Srour details the positive impact of clinical care on psychosocial wellbeing.

2021-02-11T13:49:00Z 2021-02-11T13:57:00Z Europe/Amsterdam The+hidden+face+of+noma+in+Laos https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 12:57pm 12:57PM– 1:00PM · Stage

Update from Burkina Faso

Dr Rose Drabo provides an update about the National Noma Control Programme in Burkina Faso and the prevalence of the disease in the country.

2021-02-11T13:57:00Z 2021-02-11T14:00:00Z Europe/Amsterdam Update+from+Burkina+Faso https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 1:00pm 1:00PM– 1:25PM · Sessions

Session 1

Eradicating noma as part of the achievement of SDGs and the 2030 NTD roadmap

2021-02-11T14:00:00Z 2021-02-11T14:25:00Z Europe/Amsterdam Session+1 https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 1:30pm 1:30PM– 1:33PM · Stage

Part 3 - The burden of noma

2021-02-11T14:30:00Z 2021-02-11T14:33:00Z Europe/Amsterdam Part+3+-+The+burden+of+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 1:33pm 1:33PM– 1:38PM · Stage

Short message

Dr Bertrand Piccard recounts his first experience with noma and shares his recommendations for the way forward to achieve global recognition for noma.

2021-02-11T14:33:00Z 2021-02-11T14:38:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 1:38pm 1:38PM– 1:42PM · Stage

Mulikat’s story

Twenty years ago, Mulikat Okanlawon went to Sokoto (Nigeria) seeking medical care. She now works with other noma survivors and shares a message of hope.

2021-02-11T14:38:00Z 2021-02-11T14:42:00Z Europe/Amsterdam Mulikat%E2%80%99s+story https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 1:42pm 1:42PM– 2:04PM · Stage

Noma: burden, realities and framing

Dr Ioana Cismas presents preliminary results of the study ‘Noma, The Neglected Disease. An Interdisciplinary Exploration of Its Realities, Burden, and Framing.’

2021-02-11T14:42:00Z 2021-02-11T15:04:00Z Europe/Amsterdam Noma%3A+burden%2C+realities+and+framing https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 2:04pm 2:04PM– 2:30PM · Sessions

Session 2

Neglected among the neglected: the paradox of noma

2021-02-11T15:04:00Z 2021-02-11T15:30:00Z Europe/Amsterdam Session+2 https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 2:35pm 2:35PM– 2:38PM · Stage

Part 4 - Preventing & treating

2021-02-11T15:35:00Z 2021-02-11T15:38:00Z Europe/Amsterdam Part+4+-+Preventing+%26+treating https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 2:38pm 2:38PM– 2:42PM · Stage

Short message

Dr Christos Christou, International President of MSF, explains the need for a patient-centred approach and calls on the WHO to include noma in its list of NTDs.

2021-02-11T15:38:00Z 2021-02-11T15:42:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 2:42pm 2:42PM– 2:52PM · Stage

The holistic approach of MSF

Dr Bukola Oluyide describes MSF’s holistic approach to supporting noma patients and the Sokoto Noma Hospital, run by the Nigerian Ministry of Health.

2021-02-11T15:42:00Z 2021-02-11T15:52:00Z Europe/Amsterdam The+holistic+approach+of+MSF https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 2:52pm 2:52PM– 3:05PM · Stage

The challenges of reconstructive surgery

Collaborating with pioneers in the field for more than twenty years, Dr Issa Hamady explains the specific challenges of facial reconstruction for noma patients.

2021-02-11T15:52:00Z 2021-02-11T16:05:00Z Europe/Amsterdam The+challenges+of+reconstructive+surgery https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 3:05pm 3:05PM– 3:15PM · Stage

Chronological perspective of the WHO approach in the fight against noma

Dr Yuka Makino recounts global and regional milestones of WHO action in efforts to tackle noma, since its recognition as a public health issue in 1994.

2021-02-11T16:05:00Z 2021-02-11T16:15:00Z Europe/Amsterdam Chronological+perspective+of+the+WHO+approach+in+the+fight+against+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 3:15pm 3:15PM– 3:40PM · Sessions

Session 3

The way forward to prevent and treat noma in the time of COVID-19

2021-02-11T16:15:00Z 2021-02-11T16:40:00Z Europe/Amsterdam Session+3 https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

February 11, 2021 3:40pm 3:40PM– 3:45PM · Stage

Concluding remarks

2021-02-11T16:40:00Z 2021-02-11T16:45:00Z Europe/Amsterdam Concluding+remarks https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

Speakers

Peter Hotez

PLOS founding Editor-in-Chief / Baylor College of Medicine

Shafiu Isah A.

Chief Medical Doctor, Noma Children Hospital in Sokoto, Nigeria

Kabengele Mpinga Emmanuel

Project coordinator ‘The Noma Project’

Claire Jeantet

Filmmaker and Conference Organiser

Fabrice Caterini

Photographer and Filmmaker at Inediz

ROSE DRABO

Head of the Oral Health Department and the National Noma Control Programme, Ministry of Health, Burkina Faso

Mathis Winkler

Head of Projects, Hilfsaktion Noma e.V.

Mohana Amirtharajah

Surgery Advisor, MSF

julian fisher

Researcher, Charité-Universitätsmedizin

Kamran Rafiq

ISNTD Co-Founder & Communications Director

Yuka Makino

Technical Officer, World Health Organization Regional Office for Africa

OUSMANE HAMADY ISSA

Plastic surgeon and Medical Director of the Noma Hospital in Niamey, Niger, Hilfsaktion Noma e.V.

Bukola Oluyide

Deputy Medical Coordinator Nigeria, Médecins Sans Frontières (MSF)

Christos Christou

International President of Médecins Sans Frontières (MSF)

Mulikat Okanlawon

Noma advocate and Hygiene Officer at the Noma Hospital in Sokoto

Bertrand Piccard

Co-founder of the International NoNoma Federation, Psychiatrist, Explorer and Chairman of the Solar Impulse Foundation

Leila Srour

Pediatrician and Principal Member of ‘The Noma Project’

Klaas Marck

Plastic surgeon and Chairman of the former Dutch Noma Foundation

Dr E. Osagie Ehanire

The Honourable Minister of Health, Federal Ministry of Health, Nigeria

Denise Baratti-Mayer

Principal Member of ‘The Noma Project’

Fidel Strub

Noma advocate and President of Noma-Aid Switzerlan

Marianne Comparet

ISNTD director

The event is over

Hosted by

ISNTD

International Society for Neglected Tropical Diseases. Partnerships for #NTDs, global health & development.

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