Noma, a disease that shouldn’t exist anymore
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Schedule
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Welcome & host

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Surviving noma
Short documentary directed by Claire Jeantet and Fabrice Catérini - Inediz




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Part 1 - What is noma ?

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Short message
PLOS NTDs recently added noma to its own list of Neglected Tropical Diseases. Prof. Peter Hotez explains why prioritising this disease in the time of COVID-19.

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Fidel’s story
Following 27 surgeries and years of speech therapy, noma survivor and advocate Fidel Strub is active in efforts to overcome noma, here he shares his story.

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What we know and don’t know about noma
Noma expert Dr Denise Baratti-Mayer, outlines current clinical understanding of the disease, its prevalence and aetiology, and outstanding gaps.
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Part 2 - A global issue

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Short message
Hon. Dr Osagie Ehanire outlines the steps in place to increase awareness of noma in Nigeria and pledges the country’s support to efforts to eradicate it.

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A story about noma, an old companion of mankind
Dr Klaas Marck looks at the history of noma, including how the disease disappeared from Europe in the 19th century and explains how we can tackle it today.

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The hidden face of noma in Laos
From Lao’s first reported noma case to identifying over 50 survivors, Dr Leila Srour details the positive impact of clinical care on psychosocial wellbeing.

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Update from Burkina Faso
Dr Rose Drabo provides an update about the National Noma Control Programme in Burkina Faso and the prevalence of the disease in the country.

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Session 1
Eradicating noma as part of the achievement of SDGs and the 2030 NTD roadmap



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Part 3 - The burden of noma

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Short message
Dr Bertrand Piccard recounts his first experience with noma and shares his recommendations for the way forward to achieve global recognition for noma.

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Mulikat’s story
Twenty years ago, Mulikat Okanlawon went to Sokoto (Nigeria) seeking medical care. She now works with other noma survivors and shares a message of hope.

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Noma: burden, realities and framing
Dr Ioana Cismas presents preliminary results of the study ‘Noma, The Neglected Disease. An Interdisciplinary Exploration of Its Realities, Burden, and Framing.’
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Session 2
Neglected among the neglected: the paradox of noma


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Part 4 - Preventing & treating

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Short message
Dr Christos Christou, International President of MSF, explains the need for a patient-centred approach and calls on the WHO to include noma in its list of NTDs.

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The holistic approach of MSF
Dr Bukola Oluyide describes MSF’s holistic approach to supporting noma patients and the Sokoto Noma Hospital, run by the Nigerian Ministry of Health.

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The challenges of reconstructive surgery
Collaborating with pioneers in the field for more than twenty years, Dr Issa Hamady explains the specific challenges of facial reconstruction for noma patients.
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Chronological perspective of the WHO approach in the fight against noma
Dr Yuka Makino recounts global and regional milestones of WHO action in efforts to tackle noma, since its recognition as a public health issue in 1994.

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Session 3
The way forward to prevent and treat noma in the time of COVID-19


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Concluding remarks

Speakers

Shafiu Isah A.
Chief Medical Doctor, Noma Children Hospital in Sokoto, Nigeria

ROSE DRABO
Head of the Oral Health Department and the National Noma Control Programme, Ministry of Health, Burkina Faso

Bertrand Piccard
Co-founder of the International NoNoma Federation, Psychiatrist, Explorer and Chairman of the Solar Impulse Foundation

Klaas Marck
Plastic surgeon and Chairman of the former Dutch Noma Foundation