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Noma, a disease that shouldn’t exist anymore

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Schedule

· Stage
Welcome & host
Marianne Comparet
2021-02-11T13:00:00Z 2021-02-11T13:05:00Z Europe/Amsterdam Welcome+%26+host https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Surviving noma
Short documentary directed by Claire Jeantet and Fabrice Catérini - Inediz
Shafiu Isah A. Mulikat Okanlawon Fabrice Caterini Claire Jeantet
2021-02-11T13:05:00Z 2021-02-11T13:10:00Z Europe/Amsterdam Surviving+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Part 1 - What is noma ?
Marianne Comparet
2021-02-11T13:10:00Z 2021-02-11T13:12:00Z Europe/Amsterdam Part+1+-+What+is+noma+%3F+ https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Short message
PLOS NTDs recently added noma to its own list of Neglected Tropical Diseases. Prof. Peter Hotez explains why prioritising this disease in the time of COVID-19.
Peter Hotez
2021-02-11T13:12:00Z 2021-02-11T13:14:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Fidel’s story
Following 27 surgeries and years of speech therapy, noma survivor and advocate Fidel Strub is active in efforts to overcome noma, here he shares his story.
Fidel Strub
2021-02-11T13:14:00Z 2021-02-11T13:18:00Z Europe/Amsterdam Fidel%E2%80%99s+story https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
What we know and don’t know about noma
Noma expert Dr Denise Baratti-Mayer, outlines current clinical understanding of the disease, its prevalence and aetiology, and outstanding gaps.
Denise Baratti-Mayer
2021-02-11T13:18:00Z 2021-02-11T13:31:00Z Europe/Amsterdam What+we+know+and+don%E2%80%99t+know+about+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Part 2 - A global issue
Marianne Comparet
2021-02-11T13:31:00Z 2021-02-11T13:33:00Z Europe/Amsterdam Part+2+-+A+global+issue+ https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Short message
Hon. Dr Osagie Ehanire outlines the steps in place to increase awareness of noma in Nigeria and pledges the country’s support to efforts to eradicate it.
Dr E. Osagie Ehanire
2021-02-11T13:33:00Z 2021-02-11T13:39:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
A story about noma, an old companion of mankind
Dr Klaas Marck looks at the history of noma, including how the disease disappeared from Europe in the 19th century and explains how we can tackle it today.
Klaas Marck
2021-02-11T13:39:00Z 2021-02-11T13:49:00Z Europe/Amsterdam A+story+about+noma%2C+an+old+companion+of+mankind https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
The hidden face of noma in Laos
From Lao’s first reported noma case to identifying over 50 survivors, Dr Leila Srour details the positive impact of clinical care on psychosocial wellbeing.
Leila Srour
2021-02-11T13:49:00Z 2021-02-11T13:57:00Z Europe/Amsterdam The+hidden+face+of+noma+in+Laos https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Update from Burkina Faso
Dr Rose Drabo provides an update about the National Noma Control Programme in Burkina Faso and the prevalence of the disease in the country.
ROSE DRABO
2021-02-11T13:57:00Z 2021-02-11T14:00:00Z Europe/Amsterdam Update+from+Burkina+Faso https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Sessions
Session 1
Eradicating noma as part of the achievement of SDGs and the 2030 NTD roadmap
Marianne Comparet Kamran Rafiq julian fisher
2021-02-11T14:00:00Z 2021-02-11T14:25:00Z Europe/Amsterdam Session+1 https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Part 3 - The burden of noma
Marianne Comparet
2021-02-11T14:30:00Z 2021-02-11T14:33:00Z Europe/Amsterdam Part+3+-+The+burden+of+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Short message
Dr Bertrand Piccard recounts his first experience with noma and shares his recommendations for the way forward to achieve global recognition for noma.
Bertrand Piccard
2021-02-11T14:33:00Z 2021-02-11T14:38:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Mulikat’s story
Twenty years ago, Mulikat Okanlawon went to Sokoto (Nigeria) seeking medical care. She now works with other noma survivors and shares a message of hope.
Mulikat Okanlawon
2021-02-11T14:38:00Z 2021-02-11T14:42:00Z Europe/Amsterdam Mulikat%E2%80%99s+story https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Noma: burden, realities and framing
Dr Ioana Cismas presents preliminary results of the study ‘Noma, The Neglected Disease. An Interdisciplinary Exploration of Its Realities, Burden, and Framing.’
2021-02-11T14:42:00Z 2021-02-11T15:04:00Z Europe/Amsterdam Noma%3A+burden%2C+realities+and+framing https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Sessions
Session 2
Neglected among the neglected: the paradox of noma
Kabengele Mpinga Emmanuel Marianne Comparet
2021-02-11T15:04:00Z 2021-02-11T15:30:00Z Europe/Amsterdam Session+2 https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Part 4 - Preventing & treating
Marianne Comparet
2021-02-11T15:35:00Z 2021-02-11T15:38:00Z Europe/Amsterdam Part+4+-+Preventing+%26+treating https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Short message
Dr Christos Christou, International President of MSF, explains the need for a patient-centred approach and calls on the WHO to include noma in its list of NTDs.
Christos Christou
2021-02-11T15:38:00Z 2021-02-11T15:42:00Z Europe/Amsterdam Short+message https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
The holistic approach of MSF
Dr Bukola Oluyide describes MSF’s holistic approach to supporting noma patients and the Sokoto Noma Hospital, run by the Nigerian Ministry of Health.
Bukola Oluyide
2021-02-11T15:42:00Z 2021-02-11T15:52:00Z Europe/Amsterdam The+holistic+approach+of+MSF https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
The challenges of reconstructive surgery
Collaborating with pioneers in the field for more than twenty years, Dr Issa Hamady explains the specific challenges of facial reconstruction for noma patients.
OUSMANE HAMADY ISSA
2021-02-11T15:52:00Z 2021-02-11T16:05:00Z Europe/Amsterdam The+challenges+of+reconstructive+surgery https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Chronological perspective of the WHO approach in the fight against noma
Dr Yuka Makino recounts global and regional milestones of WHO action in efforts to tackle noma, since its recognition as a public health issue in 1994.
Yuka Makino
2021-02-11T16:05:00Z 2021-02-11T16:15:00Z Europe/Amsterdam Chronological+perspective+of+the+WHO+approach+in+the+fight+against+noma https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Sessions
Session 3
The way forward to prevent and treat noma in the time of COVID-19
Marianne Comparet Mohana Amirtharajah Mathis Winkler
2021-02-11T16:15:00Z 2021-02-11T16:40:00Z Europe/Amsterdam Session+3 https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)
· Stage
Concluding remarks
Marianne Comparet
2021-02-11T16:40:00Z 2021-02-11T16:45:00Z Europe/Amsterdam Concluding+remarks https%3A%2F%2Fhopin.com%2Fevents%2Fnoma-conference Hosted virtually on Hopin (link in the description)

Speakers

Peter Hotez

PLOS founding Editor-in-Chief / Baylor College of Medicine

Fidel Strub

Noma advocate and President of Noma-Aid Switzerlan

OUSMANE HAMADY ISSA

Plastic surgeon and Medical Director of the Noma Hospital in Niamey, Niger, Hilfsaktion Noma e.V.

Marianne Comparet

ISNTD director

Denise Baratti-Mayer

Principal Member of ‘The Noma Project’

Dr E. Osagie Ehanire

The Honourable Minister of Health, Federal Ministry of Health, Nigeria

Klaas Marck

Plastic surgeon and Chairman of the former Dutch Noma Foundation

Leila Srour

Pediatrician and Principal Member of ‘The Noma Project’

Bertrand Piccard

Co-founder of the International NoNoma Federation, Psychiatrist, Explorer and Chairman of the Solar Impulse Foundation

Mulikat Okanlawon

Noma advocate and Hygiene Officer at the Noma Hospital in Sokoto

Christos Christou

International President of Médecins Sans Frontières (MSF)

Bukola Oluyide

Deputy Medical Coordinator Nigeria, Médecins Sans Frontières (MSF)

Yuka Makino

Technical Officer, World Health Organization Regional Office for Africa

Kamran Rafiq

ISNTD Co-Founder & Communications Director

julian fisher

Researcher, Charité-Universitätsmedizin

ROSE DRABO

Head of the Oral Health Department and the National Noma Control Programme, Ministry of Health, Burkina Faso

Mohana Amirtharajah

Surgery Advisor, MSF

Mathis Winkler

Head of Projects, Hilfsaktion Noma e.V.

Claire Jeantet

Filmmaker and Conference Organiser

Fabrice Caterini

Photographer and Filmmaker at Inediz

Kabengele Mpinga Emmanuel

Project coordinator ‘The Noma Project’

Shafiu Isah A.

Chief Medical Doctor, Noma Children Hospital in Sokoto, Nigeria

The event is over

Hosted by

ISNTD

International Society for Neglected Tropical Diseases. Partnerships for #NTDs, global health & development.

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