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Speakers

John Otsuki

Government Relations Manager

Dr. Julie Kanter

(Panel Advisor) Director of the Adult Sickle Cell Program & Assoc Professor of Hem/Onc at the U of Alabama - Birmingham

Emma Andelson

Senior Program Manager

Stephanie Kaplan

Deputy Dir, Gov Relations and Public Health, American Society of Hematology

Ashley Valentine

President & Co-Founder, Sick Cells

Regina Hartfield

President & CEO, SCDAA

Lakiea Bailey

Executive Director, Sickle Cell Consortium

Dr. Andrew Campell

Dir, Comprehensive Sickle Cell Disease Program Children’s National Hospital, Washington, DC

Dr. Titilope Fasipe

Co-Dir, Sickle Cell & Thalassemia Program, Texas Children’s; Assistant Professor, Baylor College of Medicine

Georgene Glass

Executive Director, Dreamsickle Kids Foundation, Inc

Andy Lord

Founder, Georgia Capitol Solutions Inc

Marjorie Dejoie-Brewer

Medical Director & Strategist, Global Medical Affairs, Vertex Pharmaceuticals

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A Tri-Collaboration

The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. and the Sickle Cell Community Consortium.

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Sick Cells

Elevating the voices of the sickle cell disease community

Sickle Cell Disease Association of America, Inc.

Sickle Cell Community Consortium

The Next Generation

A message from three young SCD Warriors on why advocacy is so important.