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Speakers

Dr. Andrew Campell

Dir, Comprehensive Sickle Cell Disease Program Children’s National Hospital, Washington, DC

Dr. Titilope Fasipe

Co-Dir, Sickle Cell & Thalassemia Program, Texas Children’s; Assistant Professor, Baylor College of Medicine

Georgene Glass

Executive Director, Dreamsickle Kids Foundation, Inc

Stephanie Kaplan

Deputy Dir, Gov Relations and Public Health, American Society of Hematology

Andy Lord

Founder, Georgia Capitol Solutions Inc

Dr. Julie Kanter

(Panel Advisor) Director of the Adult Sickle Cell Program & Assoc Professor of Hem/Onc at the U of Alabama - Birmingham

Emma Andelson

Senior Program Manager

John Otsuki

Government Relations Manager

Ashley Valentine

President & Co-Founder, Sick Cells

Regina Hartfield

President & CEO, SCDAA

Lakiea Bailey

Executive Director, Sickle Cell Consortium

Marjorie Dejoie-Brewer

Medical Director & Strategist, Global Medical Affairs, Vertex Pharmaceuticals

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A Tri-Collaboration

The National SCD Policy Forum brings together sickle cell advocates from across the country for a two-day federal advocacy event. This tri-collaborative event is hosted by Sick Cells, the Sickle Cell Disease Association of America, Inc. and the Sickle Cell Community Consortium.

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Sick Cells

Elevating the voices of the sickle cell disease community

Sickle Cell Disease Association of America, Inc.

Sickle Cell Community Consortium

The Next Generation

A message from three young SCD Warriors on why advocacy is so important.